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The Canadian Aniridia Foundation seeks to create awareness, foster research, and facilitate patient support. Aniridia is a rare genetic disease that effects the eyes of approximately 1 in 50,000 people. Being a rare disease, many of its implications remain poorly understood and patient treatments are limited need further development. The current standard of care is less about treating the disease and more about trying to maintain the vision that the Aniridia patient has left. Currently there is not cure for Aniridia.
In Canada there is a need to bridge a gap between patients and professionals that have a working knowledge about Aniridia. Unfortunately many patients will be seen by doctors who have not dealt with this condition thought out their careers due to its rarity and some many not have even heard of the condition. Bringing patients together with professionals who have experience with this disease will result in better long term care and preservation of sight for those patients.
The Canadian Aniridia Foundation has a vision to fund research that may lead to treatments and cures for many of the eye conditions that are common to Aniridia patients, and possibly cure Aniridia itself. We also have a vision to provide assistance for Canadians living with Aniridia to ensure that they are able to receive the best possible care and treatments available from professionals who are experienced and who are experts in deal with Anirida patients. While research is critical in developing vital treatments and potential cures those treatments and cures are only effective when the patient is able to receive them.
The Canadian Aniridia Network would like to ask for you support. Our immediate focus is to create awareness among professionals and identify individuals with Aniridia in Canada. If you want to get involved please connect with us, volunteer, or donate.